Communique Sunday

In Uncategorized on November 16, 2008 at 9:53 pm

Hi All,

Just a quick note to let you know that things are going smoothly the last 48hrs, and that Alex wants me to pass on some “house keeping” information to you.

Many of you have written to me wondering if Alex is reading your comments and well wishes on a computer. Alex doesn’t really have access to the floor computer right now because she is “isolated”. As I’ve written earlier, this is a new safety protocol currently in place with all CF transplant patients.  As such she is not allowed to share any equipment with other patients, including the computer. She also cannot answer your questions and concerns online at this time, though she eagerly awaits the time when she can personally communicate with all of you. ‘Til then, I have been dutifully passing on each and every comment that you write to her. 

I’ve also been informed that some of you are having difficulty sending your comments in. If this is the case, please feel free to email your regards to Alex in care of me at I’ll print them out from there for her as well.

Lastly, I am happy to say that Alex is now able to receive cards, letters etc (and is energetic enough to read them and enjoy them!). She has asked that you send these to our home address rather than the hospital (hectic place), and I will hand deliver them to her at the hospital. Our mailing address is:






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