Patience, patient! (and husband): (Wednesday, Jan. 7, 2009)

In Uncategorized on January 7, 2009 at 2:42 pm

Well I figured something was up when I hadn’t heard a peep out of Alex via cell phone yesterday. No call, no text, no answer when I called. Then, when I arrived home….no Alex.  I’d been over to the hospital on Monday night and retreived all of her stuff in advance of the move.  But between then and Tuesday morning the news came to Alex that she is not coming home for at least a few more days.  Remember when I wrote that tests had been held up over the Christmas holidays due to the fact that no one was working in the labs?  Well, one of those tests finally got done.  It was a synnergy test, a complicated algorithmic sort of test where a computer figures out which combination of antibiotics works best for Alex.  Due to the fact that Alex has CF she has developed resitance to many drugs. The synnergy study indicated that the combination the doctors guessed and prescribed for home care (in the absence of a real synnergy study) was not quite right.

So you can probably guess where this goes. New and different regimen of very strong antibiotics delivered intravenously for several days.  Hospital stay required so that the doctors can monitor the efficacy of the drug combination.  Alex and Tom very sad that they continue to live in two different worlds. Alex and Tom must remind themselves that this is all for the good and the betterment of Alex’s health and general well-being.

Ye must have patience, patient!

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