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Archive for July, 2012|Monthly archive page

Olympic Leisure

In Uncategorized on July 31, 2012 at 10:04 pm

To tell you the truth our television has been on the fritz & so we’ve not been watching any Olympics.  However, I like to think that we are indulging in summer holiday at an Olympic level. After staying up late watching a summer blockbuster, we rose early to ride. I snapped this photo of Gypsy just before we headed out. (That’s her in her summer gear, including bug ears and citronella brow band for the woods).  Because it’s summer I am out of “hibernation” and so we’ve been eating out a lot more than in the winter when I feel nervous of public spaces.  So, today we ate a lovely lunch out, and then headed back into town to watch the summer thunderstorm extraordinaire and have a siesta.  Tonight BBQ. Yesterday? Pool swimming (I actually swam a lot, not just floated, which always astonishes Dad because he thinks of me as a floater. Ha ha!), had a minty mojito, & celebrated Mom’s birthday. Day before yesterday? Been really enjoying feeling good lately, and rode around and around the hayfield non stop on Matty. Tom said, “I think that is the longest we’ve ever trotted where you didn’t have to stop!”  It felt really nice, so nice in fact that I also jumped about 8 or 10 jumps. Which was amazing! Muscle memory is a great thing! A few days prior? I danced so frigging fast at a swing dance that it made Tom tear up.  Week before that? Cottaging with friends in Muskoka, lake swims, star gazing, more bbq, reading, and… oh! Glorious summer! I’ve also been busy with the horse portraits (once I got the air conditioner in the studio), and have sung a few really cool gigs, Beaches Jazz Festival, and Brott Music Festival included! All this summering and eating has me tipping the scale and believe it or not some of my dresses are a little tight on me: which is fine by me: healthy is as healthy does! It’s been a bit tricky to stay out of the sun and cover up due to some medically caused sun sensitivity, but with careful preparation it can be done. A good friend’s husband had a stroke just the other day and we are thinking about and praying for them. It makes one take stock of the good things in one’s life. Thanks for this indulgent post. Thank you July. You have been swell to me.

summer festival season = outdoor singing!

 

Dr Tullis & CF stuff

In Uncategorized on July 14, 2012 at 10:45 pm

I recently came across a video that a fellow CFer made. It features Dr Elizabeth Tullis talking about CF.  I want to tell you all that this Doctor is not only an amazing physician, but she is a great speaker: incredibly wise, and is one MAJOR reason why I am still alive today. Visiting her would not only treat my symptoms, but it taught me about the illness, and in that way it treated my mind & all the questions I ever had (& that she has always been able to explain).  A whole team of Docs have contributed to my wellness, but this one woman kept me going for twenty years on lungs that were genetically coded to self destruct.  Anyhow, here is the video.  I think you’ll agree she’s wonderful.

What’s also remarkable about this video is that My Mom was in nursing training in the 1960s. Think how scared she would have been to have a child with CF given life expectancies back then.  Also,some of you may wonder, but as my new lungs won’t be troubled with the CF gene, I won’t benefit from the really cool research they are coming up with now, but it’s all a step in the right direction. Dr Tullis describes in the video how scientists have discovered how to open the salt channel that is at the root of all the Cf disease.  SALT transfer. It all comes down to salt. Sounds so simple, doesn’t it?

I remember the day when they discovered the CF “Gene”… we all prayed that cure would be around the corner.  Not quite. Though during the next three decades, coping mechanisms to treat symptoms did evolve extending life expectancy and quality of life of sufferers. The cure didn’t come in time for me, but transplants started to happen in the mid 1980s, & so that was my life raft.  But hopefully in future people with CF won’t NEED to have transplants.  Transplant, as we know, is such a delicate and volatile condition.  Luckily, CF research is FASCINATING to scientists… let’s hope we continue to fascinate them all the way to a cure!

Please do support to Canadian Cystic Fibrosis Foundation: compared to other charitable organizations, a resoundingly greater amount of it’s funds go towards research. http://www.cysticfibrosis.ca/

Pristine Xray, Not bad!

In Uncategorized on July 10, 2012 at 2:03 am

The Parker boys on Vancouver Island, Canada Day 2012

Well, we flew to BC for Canada Day in celebration of my in-laws 50th anniversary. It was a lovely time. I really wished, however, that everyone would stop saying it was a very long way to go for just a long weekend.  It was a great adventure! We had a wonderful time just hanging out at a blue grass festival with Tom’s brother and young family.  Some good meals with the whole family (a herd of 8) were had, and more than a few laughs. The sun even shone!

Had to be back for rehearsal on Weds, & gigs on Thursday/Saturday/Sunday, so I’ve been busy! We played The Toronto Jazz Festival recently too, and gearing up for The Beaches Jazz Festival on Saturday July 21st, and also Friday July 27th at The Royal Botanical Gardens (Burlington).  I’m in the studio doing some more work on the new record (due out next March 2013). But truly, jazz fest time is my favorite time of year to perform.  You should have seen the crazy cutting contest that broke out at our Saturday gig! It was epic! I do love my “job”.

Tom got a new camera and brought it out to Thursday’s show.

NOT to mention that Tom is finally on summer vacation and so we’ve been riding every day (waking at 7:30 am to ride before the heat of the day.)  I’m riding both Gypsy and Matty again, because Matty’s mystery lameness was cured by an award winning blacksmith. It feels great to ride her again! Oh, I love riding on the grass in the summer. Beats the indoor ring all winter.

Tom’s in New York City for an independent adventure. I think it’s important he gets to do some stuff alone. I’m spending time drawing: I have 4 portraits in the queue to draw this summer.

Most importantly, the Doctor today said, “your xray looks pristine. Better than mine! And your lungs sound great!” So, we’ve DC’d the antibiotics. Let’s hope we get some fun in this summer before the infection comes back. The bastard.  Oh immuno supression, can’t live with you, can’t live without you!

Took this photo last week of my old pony. Looking pretty fly for her age!